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X-WR-CALNAME:Supporters of Families with Sickle Cell Disease
X-ORIGINAL-URL:https://sicklecelloklahoma.org
X-WR-CALDESC:Events for Supporters of Families with Sickle Cell Disease
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SUMMARY:Hands Across Oklahoma
DESCRIPTION:Rare Disease Town Hall Meeting\nA Virtual Community Conversation\nSupporters of Families with Sickle Cell Disease\, Inc.\, in collaboration with Oklahoma Rare\, invites you to join us for an important statewide virtual town hall focused on rare diseases. \nThis community-centered discussion is designed to bring together individuals\, families\, caregivers\, advocates\, and professionals to share information\, resources\, and collective action strategies that support those affected by rare diseases across Oklahoma. \nTogether\, we are building stronger connections\, increasing awareness\, and strengthening advocacy efforts throughout our state. \n\nEvent Details\nDate: Thursday\, March 5\, 2026Time: 6:30 PMFormat: Virtual Meeting (Zoom) \nMeeting ID: 838 5024 4668Passcode: 022605 \nRegister in advance:https://us02web.zoom.us/meeting/register/5jviz3t1RKaOctL8ffRiBQ#/registration \n\nAbout the Town Hall\n“Hands Across Oklahoma” is more than a meeting — it’s a movement toward collaboration and community empowerment. \nParticipants will: \n\n\nEngage in an informative and interactive discussion \n\n\nLearn about resources available to rare disease families \n\n\nConnect with advocacy leaders and organizations \n\n\nShare experiences and identify common challenges \n\n\nExplore solutions to improve access\, care coordination\, and support services \n\n\nThis town hall aims to strengthen partnerships across Oklahoma to better serve individuals and families living with rare diseases. \n\nFeatured Speakers\nSky Collins\nFounder\, Oklahoma Rare \nSky Collins is a passionate advocate dedicated to supporting and uniting Oklahoma’s rare disease community. Through Oklahoma Rare\, she works to amplify patient voices and foster collaboration among stakeholders. \nVelvet Brown-Watts\nExecutive DirectorSupporters of Families with Sickle Cell Disease\, Inc. \nVelvet Brown-Watts is a leader in advocacy and community-based care\, committed to improving systems of support for families impacted by sickle cell disease and other rare conditions. \n\nWho Should Attend?\n\n\nIndividuals living with rare diseases \n\n\nParents and caregivers \n\n\nHealthcare professionals \n\n\nSocial workers and case managers \n\n\nNonprofit leaders \n\n\nPolicy advocates \n\n\nCommunity stakeholders \n\n\nIf you care about strengthening support systems for rare disease families in Oklahoma\, this conversation is for you. \n\nWhy This Matters\nRare diseases impact thousands of Oklahoma families\, often creating unique medical\, emotional\, and financial challenges. Community dialogue and coordinated advocacy are essential to improving outcomes. \nBy coming together\, we can: \n\n\nIncrease awareness \n\n\nExpand access to care \n\n\nImprove policy advocacy \n\n\nStrengthen community support networks \n\n\nJoin us as we stand together — hands across Oklahoma — to ensure no family facing a rare disease stands alone.
URL:https://sicklecelloklahoma.org/event/hands-across-oklahoma/
CATEGORIES:Education
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