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X-ORIGINAL-URL:https://sicklecelloklahoma.org
X-WR-CALDESC:Events for Supporters of Families with Sickle Cell Disease
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DTSTART;TZID=America/Indiana/Indianapolis:20260312T180000
DTEND;TZID=America/Indiana/Indianapolis:20260312T200000
DTSTAMP:20260420T034115
CREATED:20260303T210752Z
LAST-MODIFIED:20260303T210752Z
UID:18783-1773338400-1773345600@sicklecelloklahoma.org
SUMMARY:Vertex Gene Therapy Overview for Sickle Cell Disease
DESCRIPTION:Educational Webinar Presented by Supporters of Families with Sickle Cell Disease\, Inc.\nSupporters of Families with Sickle Cell Disease\, Inc. invites you to join us for an educational presentation focused on emerging gene therapy options for sickle cell disease. \nThis session will provide important information about a Vertex gene therapy and what it may mean for individuals and families living with sickle cell disease. As treatment options evolve\, it is essential that patients\, caregivers\, and community members have access to accurate\, understandable information to help them make informed decisions. \n\nEvent Details\nDate: March 12\, 2026Time: 6:00 PMLocation: Live via Zoom \nMeeting ID: 816 4717 4346Passcode: 778665 \nRegister here:https://us02web.zoom.us/meeting/register/ad7ggjbYRQicMlv9T11D4Q \n\nAbout the Presentation\nThis educational webinar will: \n\n\nProvide an overview of Vertex’s gene therapy for sickle cell disease \n\n\nExplain how gene therapy works in simple\, understandable terms \n\n\nDiscuss who may be eligible \n\n\nOutline what patients and families can expect during the process \n\n\nOffer an opportunity to learn more about emerging treatment advancements \n\n\nThe goal of this session is education and awareness — empowering families with knowledge about evolving therapeutic options. \n\nFeatured Speaker\nWanda Vazquez\, MBA\nPatient Educator Senior ManagerHematology Marketing\, Vertex \nWanda Vazquez serves as a Patient Educator Senior Manager in Hematology Marketing at Vertex. She brings experience in patient education and outreach\, helping individuals better understand treatment options and resources available to them. \n\nWho Should Attend?\n\n\nIndividuals living with sickle cell disease \n\n\nParents and caregivers \n\n\nHealthcare professionals \n\n\nCommunity advocates \n\n\nSocial workers and case managers \n\n\nAnyone interested in learning about gene therapy advancements \n\n\n\nWhy This Conversation Matters\nSickle cell disease has historically had limited treatment options. Advances in gene therapy represent a significant moment in the evolution of care. Access to clear\, accurate educational information allows families to engage in meaningful conversations with their healthcare providers about potential options. \nJoin us for this important educational session and stay informed about innovations shaping the future of sickle cell care.
URL:https://sicklecelloklahoma.org/event/vertex-gene-therapy-overview-for-sickle-cell-disease/
ATTACH;FMTTYPE=image/jpeg:https://sicklecelloklahoma.org/wp-content/uploads/2026/03/vertex-flyer.jpeg
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BEGIN:VEVENT
DTSTART;TZID=America/Indiana/Indianapolis:20260321T110000
DTEND;TZID=America/Indiana/Indianapolis:20260321T130000
DTSTAMP:20260420T034115
CREATED:20260313T144701Z
LAST-MODIFIED:20260313T150007Z
UID:18794-1774090800-1774098000@sicklecelloklahoma.org
SUMMARY:Health is Wealth: Spring Nutrition & Food Distribution Program
DESCRIPTION:Join us for our Health is Wealth: Spring Nutrition & Food Distribution Program\, a community initiative designed to support families living with Sickle Cell Disease (SCD) by providing access to healthy foods and valuable nutrition education. \nThis event offers families the opportunity to receive fresh food items while also participating in a short educational session focused on the importance of nutrition and wellness. Our goal is to empower families with knowledge and resources that promote healthier lifestyles and improved overall well-being. \nParticipants must attend a mandatory education session at the beginning of the event. Please note that arrival after the education session will disqualify participation\, so we encourage families to arrive on time. \nEvent Details\nDate: Saturday\, March 21\, 2026Time: 11:00 AM – 1:00 PM \nMandatory Education Session:11:05 AM – 11:15 AM \nEvent Locations\nTulsa Families with SCDWinCo Foods7130 S Memorial Dr.Tulsa\, OK 74133 \nOklahoma City Families with SCDWinCo Foods3535 NW 39th StreetOklahoma City\, OK 73112 \nRegistration Deadline\nWednesday\, March 18\, 2026 at 12:00 PM \nFamilies must register before the deadline to participate. \nThis program is part of our ongoing commitment to supporting the health and well-being of families affected by sickle cell disease across Oklahoma. \nFor more information\, visit www.sicklecelloklahoma.org or contact: \n\n\nAdrian – Tulsa CHW: 918-407-0285 \n\n\nZanade – OKC CHW: 405-626-1145
URL:https://sicklecelloklahoma.org/event/adaptive-easter-eggstravaganza-2/
ATTACH;FMTTYPE=image/jpeg:https://sicklecelloklahoma.org/wp-content/uploads/2026/03/Health_Is_Wealth_Spring_2026_5_2.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Indiana/Indianapolis:20260326T183000
DTEND;TZID=America/Indiana/Indianapolis:20260326T210000
DTSTAMP:20260420T034115
CREATED:20260303T193919Z
LAST-MODIFIED:20260303T194828Z
UID:18772-1774549800-1774558800@sicklecelloklahoma.org
SUMMARY:Webinar: Advocacy\, Access & Action
DESCRIPTION:“It’s Not Just a Diagnosis — It’s a Life” \nWhy Social Services Are Essential in Sickle Cell Care \nSupporters of Families with Sickle Cell Disease\, Inc. invites you to an important and timely conversation about the real-life impact of sickle cell disease — and why medical care alone is not enough. \nSickle cell disease is more than a diagnosis. It affects families\, livelihoods\, education\, mental health\, and long-term stability. True care requires advocacy\, coordinated services\, and access to community-based support systems that help individuals move from crisis survival to stability and dignity. \nThis powerful webinar will explore how integrated care and social services transform outcomes for individuals and families living with sickle cell disease. \nWhat You’ll Learn \n\nWhy sickle cell care must go beyond emergency treatment\nThe critical role of social workers and case managers\nHow advocacy improves access to healthcare and community resources\nStrategies for building integrated care models\nPractical ways families and providers can take action\n\nWhether you are a healthcare provider\, social worker\, community advocate\, policymaker\, caregiver\, or someone personally impacted by sickle cell disease\, this session will provide insight\, tools\, and inspiration. \nFeatured Speaker \nVelvet Brown-Watts \nCEO/Founder\, MSW\, CM\, CHC\nSupporters of Families with Sickle Cell Disease\, Inc. \nVelvet Brown-Watts is a dedicated advocate and leader committed to improving systems of care for individuals and families affected by sickle cell disease. Through her work\, she champions integrated care\, patient advocacy\, and equitable access to essential social services. \nEvent Details \nDate: March 26th\nTime: 6:30 PM\nLocation: Live on Zoom \nMeeting ID: 819 4645 7773\nPasscode: SCDMatters \nRegister here:\nhttps://us02web.zoom.us/meeting/register/Vp5cDXjhTVy0SRdycalg6Q \nWhy This Conversation Matters \nFamilies affected by sickle cell disease often face barriers that extend far beyond hospital walls — including housing instability\, employment challenges\, insurance gaps\, transportation barriers\, and lack of coordinated care. \nWhen social services are integrated into healthcare delivery: \n\nHospital readmissions decrease\nPatient trust increases\nCare coordination improves\nFamilies gain stability\nQuality of life improves\n\nThis webinar is part of our ongoing commitment to education\, advocacy\, and action in the sickle cell community. \nWho Should Attend? \n\nHealthcare providers\nSocial workers and case managers\nNonprofit leaders\nCommunity advocates\nStudents in health and social sciences\nIndividuals and families impacted by sickle cell disease\n\nJoin us as we move the conversation forward — from diagnosis to dignity\, from crisis to coordinated care\, and from awareness to action. \nBecause it’s not just a diagnosis. It’s a life.
URL:https://sicklecelloklahoma.org/event/webinar-advocacy-access-action/
CATEGORIES:Education
ATTACH;FMTTYPE=image/png:https://sicklecelloklahoma.org/wp-content/uploads/2026/03/2026-AAA-It-a-Life.png
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DTSTART;TZID=America/Indiana/Indianapolis:20260328T130000
DTEND;TZID=America/Indiana/Indianapolis:20260328T150000
DTSTAMP:20260420T034115
CREATED:20260313T144411Z
LAST-MODIFIED:20260313T144411Z
UID:18788-1774702800-1774710000@sicklecelloklahoma.org
SUMMARY:Adaptive Easter Eggstravaganza
DESCRIPTION:Join us for a joyful and inclusive Adaptive Easter Eggstravaganza\, designed especially for families who benefit from sensory-friendly and adaptive activities. This special event provides a welcoming environment where children of all abilities can celebrate Easter through fun\, engaging\, and accessible experiences. \nThe event will feature adaptive egg hunts\, quiet sensory zones\, and family-friendly activities that ensure every child can participate comfortably and safely. Our goal is to create a supportive and joyful atmosphere where smiles are guaranteed and families can make lasting memories together. \nLunch will be provided\, so families can relax\, connect with others in the community\, and enjoy a festive afternoon. \nEvent Details\nLocation:Southern Oaks Community Center400 SW 66th StOklahoma City\, OK 73139 \nDate: Saturday\, March 28Time: 1:00 p.m. – 3:00 p.m. \nFamilies are warmly invited to come celebrate Easter in a sensory-friendly\, inclusive environment where everyone can participate and have fun. \nThis event is made possible through the collaboration of community organizations committed to supporting inclusive opportunities for children and families in Oklahoma.
URL:https://sicklecelloklahoma.org/event/adaptive-easter-eggstravaganza/
ATTACH;FMTTYPE=image/jpeg:https://sicklecelloklahoma.org/wp-content/uploads/2026/03/Easter_Eggstravaganza_-_Adaptive_-_Print_-_8.5x11-scaled.jpg
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DTSTART;TZID=America/Indiana/Indianapolis:20260404T110000
DTEND;TZID=America/Indiana/Indianapolis:20260404T150000
DTSTAMP:20260420T034115
CREATED:20260313T145700Z
LAST-MODIFIED:20260313T145836Z
UID:18796-1775300400-1775314800@sicklecelloklahoma.org
SUMMARY:Circle of Friends: Spring Into Health
DESCRIPTION:Supporters of Families with Sickle Cell Disease invites you and your family to join us for Circle of Friends: Spring Into Health\, a fun and educational community event designed to promote healthy living for individuals and families impacted by Sickle Cell Disease (SCD). \nThis family-friendly gathering combines nutrition education\, community connection\, and outdoor activities to support the health and well-being of SCD warriors and their families. Participants will learn practical tips for improving daily nutrition\, maintaining hydration and energy\, and preparing simple\, family-friendly meals that support better health. \nWhat You’ll Learn\nDuring this event\, families will receive helpful information about: \n\n\nHealthy foods that support individuals living with Sickle Cell Disease \n\n\nThe importance of hydration and maintaining energy levels \n\n\nSimple\, family-friendly meal ideas \n\n\nHow proper nutrition can help prevent pain crises \n\n\nEvent Activities\nIn addition to the educational sessions\, families can enjoy a variety of fun activities\, including: \n\n\nEaster Egg Hunt \n\n\nFamily Games \n\n\nGiveaways \n\n\nCommunity Resource Information \n\n\nFamilies are encouraged to bring lawn chairs and blankets to relax and enjoy the outdoor setting. \nEvent Details\nDate: Saturday\, April 4\, 2026Time: 11:00 AM – 3:00 PM \nLocation:Supporters Office5424 N Madison AveTulsa\, Oklahoma 74126 \nRegistration Deadline\nTuesday\, March 31 at 12:00 PM \nSpace may be limited\, so early registration is encouraged. \nFor questions or additional information\, please contact:Glenda Porter\, Advocate(918) 809-1327
URL:https://sicklecelloklahoma.org/event/circle-of-friends-spring-into-health/
ATTACH;FMTTYPE=image/jpeg:https://sicklecelloklahoma.org/wp-content/uploads/2026/03/Supporters_CIrcle_of_Friends_April_1.jpg
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DTSTART;TZID=America/Indiana/Indianapolis:20260409T080000
DTEND;TZID=America/Indiana/Indianapolis:20260409T170000
DTSTAMP:20260420T034115
CREATED:20260409T212540Z
LAST-MODIFIED:20260409T212540Z
UID:18860-1775721600-1775754000@sicklecelloklahoma.org
SUMMARY:Sickle Cell Statewide 5K Walk\, Run\, or Jog for a Cure
DESCRIPTION:Save the Date – September 19\, 2026\nJoin us for a powerful day of community\, awareness\, and action as we come together to support families impacted by sickle cell disease. \nHosted by Supporters of Families with Sickle Cell Disease\, Inc.\, this statewide event brings together individuals\, families\, healthcare advocates\, and supporters for a meaningful cause. \n\nEvent Details\n\n📅 Date: Saturday\, September 19\, 2026\n⏰ Time: 9:00 AM\n📍 Location: Greenwood District\, Tulsa\, Oklahoma\n\n\nAbout the Event\nThe Sickle Cell Statewide 5K Walk\, Run or Jog for a Cure & Health Bazaar is more than just a race—it’s a movement. \nWhether you choose to walk\, run\, or jog\, your participation helps: \n\nRaise awareness about sickle cell disease\nSupport families affected by the condition\nPromote healthier lifestyles in our communities\nConnect attendees with valuable health resources\n\n\nHealth Bazaar\nIn addition to the 5K\, attendees will enjoy a Health Bazaar featuring: \n\nHealth screenings\nWellness resources\nCommunity organizations\nEducational materials on sickle cell disease\nLocal vendors and partners\n\n\nWhy It Matters\nSickle cell disease disproportionately impacts underserved communities. Events like this help shine a light on the need for: \n\nIncreased education\nBetter access to care\nStronger community support systems\n\nTogether\, we can make a difference. \n\nGet Involved\n\nParticipate in the 5K\nVolunteer\nBecome a sponsor\nShare the event with your network\n\n\nRegistration\nRegistration coming soon!Stay tuned for updates and early sign-up opportunities. \n\nStay Connected\nFollow us and check back for updates\, registration details\, and event announcements.
URL:https://sicklecelloklahoma.org/event/sickle-cell-statewide-5k-walk-run-or-jog-for-a-cure/
CATEGORIES:Walk-Run
ATTACH;FMTTYPE=image/png:https://sicklecelloklahoma.org/wp-content/uploads/2026/04/5K2026.png
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DTSTART;TZID=America/Indiana/Indianapolis:20260516T120000
DTEND;TZID=America/Indiana/Indianapolis:20260516T120000
DTSTAMP:20260420T034115
CREATED:20260326T224724Z
LAST-MODIFIED:20260401T160016Z
UID:18822-1778932800-1778932800@sicklecelloklahoma.org
SUMMARY:5th Annual Women's Empowerment High Tea & Education Program
DESCRIPTION:“Reflection of Her”\nJoin us for an inspiring afternoon of elegance\, empowerment\, and community at our 5th Annual Women’s Empowerment High Tea & Education Program\, hosted by Supporters of Families with Sickle Cell Disease. \nThis year’s theme\, “Reflection of Her\,” celebrates the strength\, beauty\, and resilience of women while raising awareness and support for families impacted by sickle cell disease. \n\n📅 Event Details\n\nDate: Saturday\, May 16\, 2026\nTime: 12:00 PM\nLocation:Bernsen Community Life Center700 S Boston AveTulsa\, OK 74119\n\n\n🎀 Event Experience\nStep into a beautifully curated Bridgerton-inspired high tea\, where elegance meets purpose. Guests will enjoy: \n\nA sophisticated high tea experience\nEmpowering educational programming\nMeaningful connections with community leaders and advocates\nA celebration of women making a difference\n\n\n👗 Theme & Attire\n\nTheme: Bridgerton\nAttire: Dresses\, Suits & Hats encouraged\n\nBring your grace\, your style\, and your story. \n\n🎟️ Tickets\n\nSeat Donation: $60 per guest\n\nYour attendance directly supports programs and resources for families affected by sickle cell disease. \n\n📞 Contact Information\n\nGeneral Information:Beatrice Humphrey – 918.200.3232\nVendor Opportunities:Glenda Porter – 918.809.1327\n\n\n💜 About the Host\nSupporters of Families with Sickle Cell Disease is dedicated to providing education\, advocacy\, and support to individuals and families impacted by sickle cell disease. Events like this help fund critical resources and build a stronger\, more informed community. \n\n✨ Call to Action (Optional for Website Button)\nReserve Your Seat TodayJoin us for an unforgettable afternoon of empowerment\, elegance\, and impact.
URL:https://sicklecelloklahoma.org/event/5th-annual-womens-empowerment-high-tea-education-program/
LOCATION:Bernsen Community Life Center\, 700 S. Boston Ave\, Tulsa\, OK\, 74119\, United States
CATEGORIES:Women's Events
ATTACH;FMTTYPE=image/png:https://sicklecelloklahoma.org/wp-content/uploads/2026/04/Empowerment-Tea-Flyer-LATEST.png
ORGANIZER;CN="Supporters of Families with Sickle Cell Disease":MAILTO:swithsicklecell@att.net
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