Who We Are
Supporters of Families with Sickle Cell Disease (Supporters) is a community-based Oklahoma nonprofit organization that has assisted families living with sickle cell diseases since 2004. We are an IRS 501(c)(3) designated nonprofit agency. Supporters is the only grassroots family support and advocacy organization in Oklahoma that serves as a center of contact and referral to community resources to assist individuals with sickle cell and related diseases who is contracted with the Oklahoma Health Care Authority.
Supporters serve as the state lead SCDAA HRSA Newborn Screening program for the state of Oklahoma.
Supporters promotes self-care management, testing, education, research and development, and economic self-sufficiency as key approaches to empowerment and effective management of sickle cell disease. Our vision is to break the cycle of the disease by increasing self-efficacy and improving the overall quality of life for children, adults and families living with sickle cell diseases in Oklahoma.
Supporters’ core goal is to increase knowledge, awareness, advocacy and support for people living with chronic health conditions of sickle cell disease in Oklahoma and highlight the challenges and impact to individuals, families and communities living with these diseases.
Supporters’ mission is to increase self-efficacy, improve the overall quality of life
for patients living with sickle cell and thalassemia, children, adults and their families within the State of Oklahoma through systemic changes in patient care, disability policies, education, family support, economic self-sufficiency, awareness and advocacy.
Supporters’ vision is to break the cycle and increase self-efficacy and improve the overall quality of life for children, adults and families living with sickle cell-thalassemia disease/trait in Oklahoma. Supporters’ believes self-care management, education and research and development, economic self-sufficiency as key approaches to empowerment.
We are dedicated to reducing the burden of sickle cell disease in Oklahoma through community education, testing awareness and advocacy. We equip individuals, families and Oklahoma community agencies with training needed to support, advocate and educate others on behalf of those affected by sickle cell-thalassemia disease/trait.