Sickle Cell Resources for Oklahoma Families

Trusted information, practical tools, and local support for every step of the sickle cell journey.

Resources for Parents & Caregivers

This page provides a curated collection of resources to support individuals and families affected by Sickle Cell Disease. From educational materials and treatment information to advocacy tools and community support, these resources are intended to help you find reliable information and practical guidance in one place.

Crisis & Emergency Resources

What a pain crisis is (plain language) When to go to the ER How to...

Downloadable ER Advocacy Card (PDF) Pain Crisis Checklist Question...

Parents & Caregivers

Caring for a child with sickle cell Communicating with doctors Preparing for hospital visit...

SCDAA caregiver guides American Academy of Pediatrics (sickle cell guidance) Hospital‑based...

Providers & Educators

What is sickle cell disease? Types of sickle cell Common treatments (high‑level) Emerging rese...

NIH / National Heart, Lung, and Blood Institute (NHLBI) CDC Sickle Cell Disease pages SCDAA edu...

School, Work and Advocacy

504 Plans & IEPs for students Talking to schools about sickle cell ...

U.S. Department of Education (504 plans) CDC school health resources S...

Oklahoma Support Services

Oklahoma hospitals or clinics treating sickle cell Local nonprofits or ...

Oklahoma State Department of Health OU Health / Children’s Hospital Okl...

Advocacy & Policy

Local Legistlation Participation Opportunities

Access to Quality Care Stigma, Bias, and Pain Management Transitioning...