someone with
sickle cell is
fighting pain
you can’t see.
Empowering people living with SCD through support,
education and case management
Sickle Cell Is Real. So Is the Pain. So Is Our Community.
Our work is rooted in education, advocacy, care coordination, and family-centered support. We stand alongside sickle cell warriors and their families amplifying lived experiences, closing gaps in care, and advocating for systemic change. Together, we are building pathways to better health outcomes, stronger families, and a future for those living with sickle cell disease.
Resources for Sickle Cell Patients & Their Families.
Sickle Cell News
Congress Delivers Key Wins for the Sickle Cell Community in 2026 Funding Bill
The sickle cell disease community has an important reason to celebrate. In early February, Congress passed a federal government funding package for fiscal year 2026 that preserves critical investments in sickle cell disease programs and advances long-fought...
Oklahoma Spotlight: What a 2025 SoonerCare Report Says About Sickle Cell Care (and Why It Matters)
In January 2025, the Oklahoma Health Care Authority published an annual update evaluating how SoonerCare serves members with sickle cell disease—an ongoing effort tied to state legislative requirements. Welcome to Oklahoma's Official Web Site The key point: Oklahoma...
Medication Update: What the Voxelotor (Oxbryta) Withdrawal Means Now—and What Research Is Saying
In late 2024, Pfizer withdrew voxelotor (Oxbryta) from the market globally after concluding the risks outweighed the benefits. ASH Research Collaborative+1That decision hit patients and clinicians hard—because many people had built their routine around it. New...
Make A Difference Today
Your support helps us provide vital education, resources, and compassionate care to families affected by sickle cell disease. Every donation—big or small—helps us empower patients, raise awareness, and advocate for a future where no one suffers in silence. Join us in making lasting change. Donate today and help us strengthen the fight against sickle cell disease.
How We Measure Our Impact
Oklahoma Famiies Served
#Emergency Kits DIstributed
# of Screenings
# of Oklahoma Counties Served
Coming Soon: Sickle Cell Navigator!
Supporters of Families with Sickle Cell Disease is developing an exciting new Sickle Cell Navigator Training Program designed to empower sickle cell patients and their families with the knowledge and tools to use artificial intelligence for better health management. This innovative training will teach participants how to safely and effectively use AI to find reliable health information, track symptoms, manage appointments, and communicate more efficiently with healthcare providers. By combining technology with compassion, this program will help families take a more active role in their care journey. Stay tuned—training launches soon!
Events
September is National Sickle Cell Awareness Month
Sickle Cell Awareness Month is a time of reflection, education, and empowerment for Supporters of Families with Sickle Cell Disease (SFSD). Each September, we honor the strength and resilience of individuals and families living with sickle cell while shining a light on the urgent need for greater awareness, research, and access to quality care. For us, this month is more than just a campaign—it’s a movement. It’s an opportunity to amplify the voices of our community, celebrate their courage, and mobilize partners, advocates, and supporters to join us in the fight for better health outcomes and equity. Through events, education, and outreach, we reaffirm our commitment to improving lives and ensuring that no family faces sickle cell disease alone.
Testimonials
This organization helped our family feel supported, informed, and less alone during some of our hardest moments with sickle cell.
Supporters of Families with SCD gave us real resources, real understanding, and real hope when we needed it most.”
Because of this community, we know where to turn during a sickle cell crisis. Their support truly makes a difference.



