Every 2 minutes,
someone with
sickle cell is
fighting pain
you can’t see.

Empowering people living with SCD through support,
education and case management

Sickle Cell Is Real. So Is the Pain. So Is Our Community.

In Oklahoma, families living with sickle cell disease face daily challenges that often gounseen—medical complexity, barriers to care, and the ongoing physical, emotional, and financial impact of managing a lifelong condition. Supporters of Families with Sickle Cell Disease, Inc. (SFSCD) exists to ensure these families are supported, informed, and empowered. Supporters of Families with Sickle Cell Disease, Inc. is a patient advocacy 501(c)(3) nonprofit organization headquartered in Oklahoma. Founded in 2004, SFSCD is the only comprehensive sickle cell community organization in the state, dedicated to improving the quality of life for individuals and families affected by Sickle Cell Disease (SCD).

Our work is rooted in education, advocacy, care coordination, and family-centered support. We stand alongside sickle cell warriors and their families amplifying lived experiences, closing gaps in care, and advocating for systemic change. Together, we are building pathways to better health outcomes, stronger families, and a future for those living with sickle cell disease.

Resources for Sickle Cell Patients & Their Families.

Crisis & Emergency Resources

What a pain crisis is (plain language) When to go to the ER How to...

Downloadable ER Advocacy Card (PDF) Pain Crisis Checklist Question...

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Parents & Caregivers

Caring for a child with sickle cell Communicating with doctors Preparing for hospital visit...

SCDAA caregiver guides American Academy of Pediatrics (sickle cell guidance) Hospital‑based...

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Providers & Educators

What is sickle cell disease? Types of sickle cell Common treatments (high‑level) Emerging rese...

NIH / National Heart, Lung, and Blood Institute (NHLBI) CDC Sickle Cell Disease pages SCDAA edu...

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School, Work and Advocacy

504 Plans & IEPs for students Talking to schools about sickle cell ...

U.S. Department of Education (504 plans) CDC school health resources S...

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Oklahoma Support Services

Oklahoma hospitals or clinics treating sickle cell Local nonprofits or ...

Oklahoma State Department of Health OU Health / Children’s Hospital Okl...

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Advocacy & Policy

Local Legistlation Participation Opportunities

Access to Quality Care Stigma, Bias, and Pain Management Transitioning...

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Sickle Cell News

Make A Difference Today

Your support helps us provide vital education, resources, and compassionate care to families affected by sickle cell disease. Every donation—big or small—helps us empower patients, raise awareness, and advocate for a future where no one suffers in silence. Join us in making lasting change. Donate today and help us strengthen the fight against sickle cell disease.

Donate!

How We Measure Our Impact

Oklahoma Famiies Served

#Emergency Kits DIstributed

# of Screenings

# of Oklahoma Counties Served

Coming Soon: Sickle Cell Navigator!

Supporters of Families with Sickle Cell Disease is developing an exciting new Sickle Cell Navigator Training Program designed to empower sickle cell patients and their families with the knowledge and tools to use artificial intelligence for better health management. This innovative training will teach participants how to safely and effectively use AI to find reliable health information, track symptoms, manage appointments, and communicate more efficiently with healthcare providers. By combining technology with compassion, this program will help families take a more active role in their care journey. Stay tuned—training launches soon!

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Events

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September is National Sickle Cell Awareness Month

Sickle Cell Awareness Month is a time of reflection, education, and empowerment for Supporters of Families with Sickle Cell Disease (SFSD). Each September, we honor the strength and resilience of individuals and families living with sickle cell while shining a light on the urgent need for greater awareness, research, and access to quality care. For us, this month is more than just a campaign—it’s a movement. It’s an opportunity to amplify the voices of our community, celebrate their courage, and mobilize partners, advocates, and supporters to join us in the fight for better health outcomes and equity. Through events, education, and outreach, we reaffirm our commitment to improving lives and ensuring that no family faces sickle cell disease alone.

Testimonials

This organization helped our family feel supported, informed, and less alone during some of our hardest moments with sickle cell.

Bill P

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Supporters of Families with SCD gave us real resources, real understanding, and real hope when we needed it most.”

Ruth Hills

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Because of this community, we know where to turn during a sickle cell crisis. Their support truly makes a difference.

Mark L

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