by Patricia Wilson-Smith | Oct 26, 2026 | Advocacy & Policy, Education, Stories
Sickle Cell Awareness Month Velvet Brown-Watts Honored with 2026 Sickle Cell Advocacy Award Honoring the courage, resilience, and humanity of individuals and families affected by sickle cell disease—because behind every diagnosis is a life, a voice, and a future. Give...
by Patricia Wilson-Smith | Sep 23, 2026 | Advocacy & Policy, Education, Stories
Sickle Cell Awareness Month Warriors Spreading Hope: Every Story Deserves to Be Seen Honoring the courage, resilience, and humanity of individuals and families affected by sickle cell disease—because behind every diagnosis is a life, a voice, and a future. Give Hope...
by Patricia Wilson-Smith | Feb 3, 2026 | Advocacy & Policy, Education
The sickle cell disease community has an important reason to celebrate. In early February, Congress passed a federal government funding package for fiscal year 2026 that preserves critical investments in sickle cell disease programs and advances long-fought...
by Patricia Wilson-Smith | Dec 31, 2025 | Advocacy & Policy, Education, Sickle Cell News
In January 2025, the Oklahoma Health Care Authority published an annual update evaluating how SoonerCare serves members with sickle cell disease—an ongoing effort tied to state legislative requirements. Welcome to Oklahoma’s Official Web Site The key point:...
by Patricia Wilson-Smith | Dec 31, 2025 | Advocacy & Policy, Education, Medicine, Sickle Cell News
In late 2024, Pfizer withdrew voxelotor (Oxbryta) from the market globally after concluding the risks outweighed the benefits. ASH Research Collaborative+1That decision hit patients and clinicians hard—because many people had built their routine around it. New...
